Zolgensma News
A two-year-old is set to get world's most expensive drug
Finance ministry has decided to waive off import duty
The treatment has given a new lease of life to the child, who was diagnosed with SMA when he was just one year old.
In three months, the parents raised enough money to pay for the treatment.
Many celebrities, including Virat Kohli, Anushka Sharma, Anil Kapoor, Ajay Devgn and several from the TV industry came forward to help the couple.
5-month-old Teera Kamat, who is battling in a hospital in Mumbai, has a spinal muscular atrophy disease that does not contain a protein-producing gene. To save lives, Zolgensma injection is done for 16 crores, this injection has to be sourced from America, which is taxed 6 crores. The cost of injection after tax is estimated at Rs 22.5 crore. Devendra Fadnavis wrote to the PM for treatment of Tira.
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